Come celebrate sweet Stella Craig!
Stella has been diagnosed with a very rare genetic disorder called SCN8A. There are less than 800 known cases of SCN8A in the entire world and Stella's specific mutation is 100% unique to her!
This mutation causes her to suffer from very hard to control seizures, significant developmental delays, severe hypotonia, chorea (movement disorder), sleep issues, and cortical vision impairment. This mutation also causes her to have an increased chance of SUDEP (sudden unexpected death of epilepsy patients).
The Craig family is in need of a medical van to help load Stella (along with her wheelchair,) in and out of the vehicle. She is a growing girl, and getting a little hard for her momma to load her in and out on her own.
This town loves this little girl and her wonderful family. Come sing some karaoke, bid on items in the silent auction, enjoy the Taco bar, Open bar, and help out this amazing family and their sweet Stella.
LINK TO FACEBOOK EVENT- https://fb.me/e/33TpzijrK